Schaumburg Hyatt Regency
Schaumburg, IL, near Chicago O’Hare Airport
October 11, 2020, 10am-3pm
Please join us for this opportunity to learn about the porphyrias and to meet other members of your community! Caregivers, family and friends are welcome!
The Porphyrias Consortium and the American Porphyria Foundation invite you to attend a free patient day meeting on Sunday, June 28th, 10am-3pm (Registration and Coffee at 9:15am).
The Erythropoietic and the Acute Hepatic Porphyrias will be discussed by international porphyria experts. A special Ask the Experts session will be moderated by a panel of expert physicians!
We look forward to seeing you in Schaumburg!
Click here for hotel reservation information.
The agenda for Patient Day is below:
Sunday, October 11, 2020
|Concurrent Patient Session|
|Chairs: K. Wheeden, MBA & D. Lyon|
|9:15 am||Registration and Coffee|
|10:00 am||Welcome & Program Overview
K. Wheeden, American Porphyria Foundation
|10:15 am||APF and International Porphyria Advocacy
D. Lyon, American Porphyria Foundation
|10:45 am||Heme Biosynthesis & the Porphyrias 101
S. Keel, MD, University of Washington, Seattle
|11:15 am||Acute Hepatic Porphyrias: What Every Patient Should Know
K.E. Anderson, MD, University of Texas Medical Branch, Galveston; J-C Deybach, MD, PhD, Paris Diderot University, Paris, France
|11:45 am||Porphyria Cutanea Tarda: What Every Patient Should Know
K.E. Anderson, MD, University of Texas Medical Branch, Galveston; J.D. Phillips, PhD, University of Utah, Salt Lake City
|12:05 pm||Erythropoietic Protoporphyria: What Every Patient Should Know
M. Balwani, MD, MS, Icahn School of Medicine at Mount Sinai, New York; A. Dickey, MD, Massachusetts General Hospital, Boston
|1:30 pm||Psychosocial Studies of the Porphyrias
H. Naik, PhD, Icahn School of Medicine at Mount Sinai, New York
|2:00 pm||Current and Emerging Therapies
J-C Deybach, MD, PhD, Paris Diderot University, Paris
|2:30 pm||Ask the Experts Panel
Moderated by M. Mazepa, MD, University of Minnesota
K.E. Anderson, MD; M. Balwani, MD, MS; J-C Deybach, MD, PhD; M. Kazamel, MD; E. Pischik, MD, PhD; E. Sardh, MD, PhD
|3:00 pm||Summation & Closing Remarks
K. Wheeden, MBA; D. Lyon, American Porphyria Foundation
Please contact the American Porphyria Foundation with any questions at firstname.lastname@example.org or 1-866-APF-3635.